July 6 10
Hope you all had a nice Independence Day holiday weekend.
I’d like to focus today’s Journal Update on an incredible young lady named Rina Goldberg. Rina lives in PA and is battling mitochondrial disease. Rina exemplifies the “B+ spirit”. When she had her Make-A-Wish experience granted, she chose to have a room in her home renovated rather than taking a trip. One of the prominent features of the room is a door with a huge “B+” on it. Rina has written a screenplay and insisted upon her family wearing their B+ shirts for their read-through the other day. As you will see on the second link below, Rina’s family has shared a really cool slide show of the day’s events. Rina even picked out the music and, what an amazing choice she made. Thank you to Robin Trautmann who generously gave of her time and talent to help Rina and her family with this project. Please take a few minutes to watch Rina’s slide show. You won’t regret it.
http://www.caringbridge.org/visit/rinag/journal?jid=5743823
http://robintrautmannphotography.com/slideshows/Magic%20Bracelet.exe
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For those of you who are local, one of our B+ Heroes, Noxah Palomo, is having “Noxah Night at the Blue Rocks” this Saturday night. Come out and join the fun and sign up for the bone marrow registry. Noxah needs your help.
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Another great activity coming up is “A Night at the Movies” on July 16th in Dover, DE. The fun starts at 8pm and it will be a “Blind Side” & “Up” double feature. The location is the Holy Cross Field. What’s so cool about this night is not that it is a fundraiser for The B+ Foundation (which it is), but that it is organized by a group of teenagers called D-ROC (Delaware Revolution of Change). Please come and support these guys, help fight childhood cancer, and have fun! For more information, please visit the Facebook page for “A Night at the Movies”:
http://www.facebook.com/event.php?eid=131957036824448
Live Like Andrew - smile (even if it’s 100 degrees! :)
B+
Ali’s & Andrew’s Dad
www.BePositive.org